Life with pulmonary fibrosis

Information, resources, and support for people living with pulmonary fibrosis and those who care for them

Understanding pulmonary fibrosis

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Conditions with pulmonary fibrosis

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Treatments for pulmonary fibrosis

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Living with pulmonary fibrosis

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Guidance for your journey with pulmonary fibrosis

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Which best describes you?

• I have pulmonary fibrosis
• My loved one has pulmonary fibrosis
• I/My loved one is being evaluated for pulmonary fibrosis

Which is most applicable to you?

• The condition is called idiopathic pulmonary fibrosis (IPF)
• The condition is called systemic-sclerosis-related interstitial lung disease (SSc-ILD)
• The condition is called hypersensitivity pneumonitis (HP)
• The condition is called sarcoidosis
• The condition is called rheumatoid arthritis interstitial lung disease (RA-ILD)
• The condition is called primary Sjogren's syndrome-related interstitial lung disease (pSS-ILD)
• The condition is another progressive fibrosing interstitial lung disease (PF-ILD)

What topics are you most interested in today?

• How PF is diagnosed
• Ways to manage pulmonary fibrosis symptoms
• Support groups for people with PF
• Treatments for PF
• Quitting smoking
• Resources for carers

Sjögren's syndrome

Scleroderma with ILD

IPF

Additional Resources

RA-ILD

Sarcoidosis

Hypersensitivity pneumonitis

Patient Stories

Carer Support

Oxygen Therapy

Medication

Mental Wellbeing

Physical Wellbeing

Managing Pulmonary Fibrosis

Resources

Recently Diagnosed

Diagnosing PF

Jean’s Story

A diagnosis of pulmonary fibrosis can feel overwhelming. Watch the video to see how Jean continues to thrive.

Abbreviations: ILD, interstitial lung disease; IPF, idiopathic pulmonary fibrosis; PF, pulmonary fibrosis; RA-ILD, rheumatoid arthritis-associated interstitial lung disease.